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Tuesday, December 18th 2007

2:17 PM

Join us for Lupus Advocacy Day 2008!

 

 

 

You are invited to join the Lupus Foundation of America in Washington, D.C. for our 2008 Lupus Advocacy Day!

  • Monday, March 10, 2008 - Westin Alexandria Hotel
  • Tuesday, March 11, 2008 - Capitol Hill, Washington, D.C.

Our two-day 2008 Lupus Advocacy Program will commence on March 10th with a training session and dinner at the Westin Alexandria Hotel to discuss how to make the most of your meetings with your Members of Congress. On Tuesday, March 11th, the LFA, as well as chapter representatives, lupus physicians and researchers, and other advocates will travel to Capitol Hill to meet with Members of Congress and inform them about how debilitating lupus can be.

The LFA needs you and your friends and family members to visit your federal Representatives and Senators to urge them to support more funding for lupus research and education.

Register now at http://www.lupus.org/newsite/pages/2008AdvocacyDayRegistration.htm

The registration fee for Lupus Advocacy Day is $35 per person, which includes dinner on March 10th and breakfast on March 11th. The room rate for the Westin Alexandria Hotel is $229 per night.

If you have any questions, please contact Sara Chang at chang@lupus.org or by phone at 202-349-1169.

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Thursday, December 13th 2007

5:12 AM

Welcome to LivingLupie.com * Katerina Canyon -- Living Lupie

 

 

 

Hi, and welcome to Living Lupie!  This is a site I am using to share my experiences about dealing with lupus in hopes of helping others deal with lupus.  I hope this helps you in some way.

On this site, you will find links to helpful lupus information and a blog about my lupie life.  Feel free to send comments to me at Lupie Mail.  


My Blog

In this blog, I discuss my daily lupus issues, such as, how I deal with the pain, adjust to the changes to my skin and hair, and whatever else I do that's lupus related.  Click here for my Living Lupie Blog

Lupie Book Reviews

I just added a link for books on lupus.  I'll update this list often, so keep checking back.  Click the link for Lupie Book Reviews. 

Lupie Music

With lupus, your mood often affects your health.  I've put together a list of songs to help perk up your mood and make you feel like dancing!

You have lupus? Funny, you don't look sick?

If you suffer from lupus, odds are you have had someone say this to you.  In many cases, people with lupus don’t look really sick, but they feel sick.    People often say to me, "I'd never guess.  You look great."  I usually reply, "Thanks.  My body is mostly ornamental."  If you have lupus, you may possibly feel achy, have a low-grade fever, swollen joints, a rash, plus a myriad of other symptoms.  If you have just been diagnosed with lupus, it is also likely that you’ve been feeling sick for a while because the average lupus sufferer experiences symptoms for five years before he or she is actually diagnosed.

What is lupus?
Lupus is an autoimmune disease.  This means that the immune system is attacking the body itself instead of a virus or infection.  When this happens, a person with lupus can experience inflammation and cell and tissue damage.  Click here to read more

Lupie Grab Bag

Okay, I've found some interesting lupie facts and news, and I didn't know where to put them, so I came up with Lupie Grab Bag.

Lastly

I'm not a doctor.  I'm just a woman dealing with lupus and sharing information and experience.  If you want advice on treatment and diagnosis, it is best to get that from a doctor experienced in dealing with lupus, such as a rheumatologist.

Katerina Canyon -- Living Lupie 

 

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Tuesday, December 4th 2007

5:43 PM

Hurry, Time Is Running Out!

 

 

   Monday, December 10th Is The Last Day To Place Your Orders For Christmas Delivery!


With the holiday season approaching, I'm sure you have a lot of shopping to do!
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or
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For more information, please contact:
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info@bejayesthings.com

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Saturday, November 10th 2007

6:40 PM

Choose Your Discount !

 

 
 
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With the holiday season approaching, I'm sure you have a lot of shopping to do! No matter who is on your list, you are sure to find something just right for them!

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15% off with coupon code: 15OFF
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For more information, please contact:
Barbara Johnson
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info@bejayesthings.com

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Wednesday, October 24th 2007

10:44 AM

And The Winner Is....

 

October Is Lupus Awareness Month!
 
From The Staff...

 
As you know, if it wasn't for our customers, our friends and our advisors, there would be no us. If there's something that you want to see here, please let us know.
 
Keep Your Kids Safe On Halloween!
Gift Giving Etiquette  
 
Etiquette for "Please, No Gifts"
 
It is polite and appropriate to respect the host's request if you've been to a gathering but asked not to bring a gift. This applies to a birthday party, graduation party, anniversary celebration, wedding, or any gift giving occasion where the invitation specifically reads: "No Gifts, Please". If you must bring "something", try a card or some other very small sentiment, or give to a charitable organization in the recipient's name.
 

Have Fun, Make Money

-----------------------------------------

A little creativity can go a long way toward helping you make money doing things you enjoy. Take a look at some of the suggestions here, then think about ways you can get paid to do what you love to do.

Get paid to shop - Mystery shopping is a great way to make money in your spare time by providing valuable customer service feedback to businesses. It's flexible and fun, and just about anyone can do it. The most important quality you need is to be reliable. It also helps to be observant and have good writing skills. Mystery shopping is done around the world, so there are probably mystery shops being done in your neighborhood right now.  For more information, get a copy of "The Mystery Shopper's Manual" at http://www.idealady.com/. The book includes a list of 100 companies hiring shoppers across the US and Canada and around the world, along with lots of insider tips.

Get paid to talk - You've seen those people handing out samples in the grocery store or demonstrating a product at the home show. They get paid to do that, and you can, too. To be good at this, you need an outgoing personality. You have to be willing to speak up and get people to try what you're offering, take a coupon, or watch your demonstration. You can find these jobs by watching the help wanted ads in your local newspaper. Also, some companies that hire mystery shoppers also hire demonstrators. Once you are in the data bases of a few companies you will be contacted when they have openings.

Get paid to party - Direct sales companies, such as Tupperware, Pampered Chef and others, offer women one of the best ways to make extra money or launch a lucrative new career. You get paid to go to parties, do product demonstrations and take orders. You set your own schedule, so you can fit work into your life, not try to squeeze life in around a job. For more information, see the Direct Selling Association at http://www.dsa.org/.

Don't want to be a sales representative? You can get free products by hosting a party in your home. Look for a local representative in your phone book and ask how you can earn free products by hosting a party.

Get paid to be in the movies - You don't have to live in Hollywood to be an extra in a movie or TV show. Your city or state probably has a film commission where you can get information about upcoming productions. Do an Internet search for "film commission" and your city or state to find them. My local film commission regularly lists opportunities to be an extra in movies or TV shows, be a crew member on an independent film, or even to get paid to be in the audience of a TV show.

Get paid to drive - If it seems as if you are always in your car, or your car is often parked in a high-traffic area, you can use your car to make money by getting it painted with an ad. Advertisers look at what kind of car you drive, its condition, where and how much you drive, how many people see the car when it's parked and other factors when choosing cars for these promotions. If you and your car are what they're looking for, they will pay you to show their ad on your car. (More info: http://www.autowraps.com/)

Get paid for your opinions - Participating in focus groups and other market research doesn't provide regular income, and there are often limits on how often you may participate. However, I've got lots of opinions, and I'm always happy when I can get paid for them! I've been paid for opinions on music, clothes, and even the scent of a laundry product. You can increase your chances of getting selected by registering with market research companies. Check your phone directory or the local mall to find one in your area.

There are also many places online where you can get paid to write opinions or reviews, or to fill out surveys. Make sure you understand how you will be paid before spending a lot of time on this. Many sites pay in credits that can only be redeemed with them, but some pay in cash.

Get paid to do your own thing - When you can make money doing something you love to do, it doesn't feel like work at all. My main career involves speaking and writing, both things I enjoy. I've also been paid for my opinions, made money as a mystery shopper and been a movie extra! Use your imagination to find ways to make money while doing what you enjoy. I call it "Solo-reneuring" and that's how I've made my living for more than eight years. Do you love animals? Start a pet sitting or dog walking service. If you enjoy crafts, dance or playing an instrument, you may be able to teach a class or offer private instruction to people who want to learn what you know.


General info - When considering any of these opportunities, make sure you understand what you will be asked to do and how you will be compensated. Then you can decide if it is worth your time and effort.

Be careful about paying to be listed in data bases. Some companies charge you to apply with no guarantee of work. You may be paying for a legitimate opportunity, or you may just be saying goodbye to $20 or more. Find out what you will get before paying a fee.

You probably won't get rich doing these things, but you can get paid to do things you enjoy. Even if you don't make a million dollars, your life will be richer for the joy and satisfaction you get from your work--and you'll have at least a few extra dollars in your pocket!

You'll find lots of great information on growing your business and more at http://www.freearticles.biz/. Most articles may be freely reproduced at your web site or in your print or online newsletter.

Copyright 2003 Cathy Stucker, IdeaLady.com
 
 
And The Winner Is....
.................................................

Robert S------ of NC is the contest winner for September!

CONGRATULATIONS ROBERT!

Thank you for joining our mailing list. You have 72 hours to claim your gift. Send an email with your delivery address to:

info@bejayesthings.com

Join our mailing list to be entered in the monthly drawing because you may be our next winner. Share our newsletter with your family and friends, one of them could be our next winner. Each month we give a gift to some lucky subscriber. No purchase required! 
 
 
Tip Of The Month
 
Keep Produce Fresh With A Sponge!

To keep vegetables fresher longer, line your bin with dry sponges. When the sponges are wet from collecting moisture, wring them out and replace. Once a week, soak sponges in a bleach and water solution before putting into the bin.

Barbara
Blairsville,  GA

 
Thank you for taking the time to read our little newsletter. We value your opinion, so tell us what you think. Send an email to: info@bejayesthings.com
 
 
Sincerely,
 

Barbara Johnson
Bejaye's Things
Save
15%
A special discount for you! We don't mind if you share this offer with a friend or family member.  For discount use code: newsletter
 
Order Early For Christmas!http://www.BejayesThings.com
Offer Expires: October 30, 2007

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Saturday, October 13th 2007

8:06 PM

Lupus Walk Article about Kendra!

 

 

YEAH KENDRA! Our very own cure4lupus organizer has put together a walk in Iowa and had an article written about it below! YOU GO GIRL! hugs,
Jayne
_________________________________________________________


Kendra Isola, 29, of Urbandale helped organize the Iowa Walk for Lupus Now, scheduled for today at Gray's Lake. The goal is to raise $40,000 for lupus research. Isola has dealt with depression related to lupus, a disease affecting the immune system. Get involved
WHEN: The first Iowa Walk for Lupus Now is from 9 a.m. to noon today at Gray's Lake, 1400 Fleur Drive in Des Moines.
COST: There is no cost to walk but donations will be accepted. Donors who give $50 or more will receive a T-shirt.
DETAILS: Organizers with the Iowa chapter of the Lupus Foundation of America hope the event can be an annual one. For more information, go to lupusia.walk.kintera.org.

Woman fights lupus, sets up fundraiser 

She says her role in today's walk gives her purpose



By GUNNAR OLSON
REGISTER STAFF WRITER


It took two years of deep depression and a move home to Iowa before Kendra Isola figured out who she was.

She was never going to be the mother and business owner she struggled to become while living in Florida. Lupus - which turns the immune system against its own body, attacking its healthy cells - had rendered her physically unable. Her joints hurt so badly that getting through the day felt like running a marathon.

"I had this image of myself of who I should be - healthy, strong, working hard," she said. "And I couldn't reconcile that I wasn't that person. I didn't like who I was."

Two years after moving back to the Des Moines area for better health care and to be closer to her family, Isola is excited about her new life as an advocate for fighting lupus.

Isola, now 29, is one of the organizers of the first Iowa Walk for Lupus Now, to be held from 9 a.m. to noon today at Gray's Lake in Des Moines.

Organizers with the Iowa chapter of the Lupus Foundation of America are aiming to raise $40,000 for research for a cure to lupus. They hope the event will be an annual one.

An estimated 1.5 million Americans live with some form of lupus, which is difficult to diagnose and sometimes fatal, according to the Lupus Foundation of America.

The federal Food and Drug Administration has not approved a new drug to treat lupus specifically in 30 years, according to the foundation.

"We have so much hope on the horizon," Isola said. "We can have a cure - or at least better treatment - soon."

Sara Webster, a Sheldahl resident who also has lupus, said she quickly came to admire Isola while working with her to organize the lupus walk.

"Her life has gone in a different direction," she said. "Her life has changed and she's accepted it and she's doing it for the greater good."

It was in Florida about four years ago that Isola had nearly built the life she always wanted. She was recently married, was starting a career selling real estate, and was looking forward to raising a family.

Having lupus was something she just dealt with - she had done that since first showing symptoms at 13.

Then she started missing meetings with clients and quit her job. She learned she couldn't have kids.

Isola fell into a depression that would last two years. She stayed at home and watched 12 or more hours of television every day, sleeping the rest of the time, always exhausted.

Her husband was supportive, but her state wore on him visibly, and that depressed her further. They spent thousands on her medications.

They evacuated their home for Hurricane Wilma in 2005, and she made up her mind then that she wouldn't return.

Sitting in the Urbandale duplex she now shares with her husband and father, Isola recalled her slow ascent from depression once she arrived in Iowa two years ago. She said she still spends a lot of time sleeping and in front of the TV.

Being around family helped, she said, but it was launching a Web site, www.cure4lupus.org, that ultimately pulled her out of depression. Sharing her story, letting others with lupus know they are not alone, has given her purpose.

Six months after launching her site, she created a page on MySpace.com, the social networking site, and within weeks she started receiving e-mails by the hundreds from people like her. "Once I found this way to reach out to people and make a real different, I started liking who I was becoming," she said.

Reporter Gunnar Olson can be reached at (515) 284-8039 or golson@dmreg.com


 

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Saturday, September 29th 2007

11:59 PM

October is Lupus Awareness Month

 

 

Learn About HSS Programs that Promote Lupus Education and Support

Most people are unaware of how life-threatening lupus can be. It often manifests itself internally, preventing outsiders from understanding the pain, fatigue, stress, depression, and many other symptoms that are coupled with the illness. Since little is known about the illness throughout the communities it affects the most, lupus awareness and education is critical.

Some quick facts about lupus:

  • Systemic Lupus Erythematosus (SLE) can vary from a mild condition to a life-threatening illness, which causes disease by attacking a person’s autoimmune system. It can inflame joints and attack kidneys, hearts, lungs and liver, leading to pain, dysfunction, and sometimes permanent damage to healthy tissues.

  • Approximately one and a half to two million Americans suffer from this potentially fatal autoimmune disease, and 90% of those are women.

  • Most women are stricken during their childbearing years.

  • Most people develop their lupus between the ages of 15 and 45.

  • Asians, African Americans and Latina women are 2-4 times more likely to have lupus than Caucasian women.

Hospital for Special Surgery offers a variety of free support and education programs for people with lupus:

LupusLine, a national telephone peer counseling service, links callers with trained volunteers who have lupus. Since its inception in 1988, LupusLine has helped more than 16,000 patients and their families. Call 866-375-1427 toll-free. Hospital for Special Surgery's LupusLine Program, made possible through funding by Rheuminations, Inc., reaches out to the communities we seek to serve in cooperation with the S.L.E. Lupus Foundation.

Charla de Lupus, a peer health education program, links callers with trained volunteers who are lupus veterans, with a particular emphasis on reaching Spanish-speaking communities. The program also offers monthly Teen and Parent Chat Groups in New York City. Call 866-812-4494 for assistance in English and Spanish. Charla de Lupus, offered by Hospital for Special Surgery, is made possible through funding by Rheuminations, Inc.

LANtern, a peer health education program that supports, empowers and enhances the quality of life of Asian Americans and their families with lupus, initially targeting the Chinese American community. Call 866-505-2253 for assistance in English, Cantonese and Mandarin. Hospital for Special Surgery's LANtern Program, made possible through funding by Rheuminations, Inc., reaches out to the communities we seek to serve in cooperation with S.L.E. Lupus Foundation, Inc., Charles B. Wang Community Health Center, Chinese Community Partnership for Health, NYU Downtown Hospital, Hospital for Joint Diseases, and the Center for the Study of Asian American Health at the NYU School of Medicine.

SLE Workshop, an informal forum held at Hospital for Special Surgery in which lectures by prominent lupus experts are followed by group discussion. Call 212-606-1033.

In addition, we are pleased to offer two award winning publications to those interested in the disease:

  • For Inquiring Teens with Lupus: Our Thoughts, Issues & Concerns, a teen-focused educational booklet. Call 866-812-4494 toll-free for a copy.

  • What Chinese-Americans and their Families Should Know About Lupus, a Bilingual English/Chinese culturally relevant informational booklet. Call 866-505-2253 toll-free for a copy.
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Thursday, August 23rd 2007

4:07 PM

Share Senseo is back!

Thank you for participating in the Share Senseo® promotion! We hope you have been enjoying your new Senseo® Coffee Machine.

Your friends and family may be interested in receiving a Senseo® Coffee Pod System of their own. Simply forward them this email or send them the following link so they can have a chance to participate too!

http://wwwsharesenseo.com/index.jsp?q=e-v32

Selected participants will receive the following $70 retail value for FREE*:
  • Senseo® Single Serve Coffee Pod System
  • Bag of Senseo® gourmet coffee pods
  • Senseo® Coffee Pod Canister for easy pod storage and long-lasting freshness
  • 5 $20-off Senseo® coffee machine cards to share with friends and family



Thanks for your interest.

The Share Senseo® Team



*Participants must pay shipping and handling fee of $15

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Friday, April 27th 2007

7:51 PM

San Antonio Walks with Us - 2007!

 

 

 

 

May 12th, 2007 *
McAllister Park,
San Antonio, TX
Check-in begins at 9, Walk begins at 10 * Rain or Shine * 5K (3.1 mi)

..> ..>

..> ..>
1Foot

Walk!

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1Foot

Sponsor a Walker!


  Please click here if you are interested
in participating in the walk!

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Sunday, April 22nd 2007

6:49 PM

Austin Walks with Us - 2007!

 

 

April 28th, 2007 *
Lakeview Pavillion,
Old Settlers Park, Round Rock, TX
Check-in begins at 9, Walk begins at 10 * Rain or Shine * 5K (3.1 mi)

..> ..>

..> ..>
1Foot

Walk!

..> ..>
1Foot

Sponsor a Walker!

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