Welcome! I hope you enjoy your stay.
Join our mailing list here because you may be our next winner!
Bejaye's Blog has a" little this and a little that " and a tad bit more of something else worth talking about. We also have some great sites and links for you to visit.
Dear Lupus Supporter,
I am writing in regards to a new lupus resource that is available: http://lupus.physiciansforpatients.com. Physicians for Patients has established this online version of a social support group for those living with lupus, their families, and their supporters. The forum is physician moderated and allows the users to interact with each other; as well as, with our physician specialist (at no cost).
The physician moderator is Dr. Joe Shanahan. He is a graduate of Brown University -completing his specialty training in rheumatology at Duke University School of Medicine, where he still remains as faculty. Dr. Shanahan is present on the forum to help answer questions and encourage discussion.
So far, the feedback has been amazing, but we are looking for more input --I would appreciate your support in this regard. Please take a look and let me know what your thoughts are:
http://lupus.physiciansforpatients.com
I look forward to hearing from you!
-david
David Gutkin, DO
Vice-President, Business Affairs
PhysiciansForPatients
Tel: 310-405-3901
Fax: 323-446-8445
david_gutkin@physiciansforpatients.com
www.physiciansforpatients.com
Have you ever walked into someone's home and noticed a certain
something special about it?
It makes you want to peek around, doesn't it?
What makes a home that much more intriguing is the obvious
care and effort the owner puts into it. There's something very
special that collectibles and other home decor items bring to
your home. To the casual observer, it says Good Taste and
a whole lot of loving.
I know you're busy, but ...
just for a minute do something for yourself!
Close Your Eyes and enjoy a Fantasy.
As you relax, envision yourself luxuriating in a bath or shower filled with the aromas of Coconut Lime or Lavender and Sage or the delicious compelling smells of your favorite fruits like apples or oranges or pears.
Maybe you'd like to try something distinctly different for a change, something to make uniquely yours. How about an Ocean Breeze
This must be what it's like to live as Royalty! Pampered and Exotic and Intoxicatingly Wonderful!
We give that to you! In fact, what you'll find at Bejaye's Things is unlike anything you'll find anywhere else! We got what you're looking for to make YOU and YOUR HOME become as stylish and individual as you want to be!
From Garden Decor to Aromatic Scents to Gift Cards, Collectibles & Toys - we have it down to the perfect science between your wishes, your needs and everything in-between!
Signing up for our Free Newsletter only takes a moment! We have a drawing every month and who knows? You may very well be our next winner! But, even if you aren't our next winner, you'll FEEL like one after experiencing what we have to offer you, your family and your friends!
Welcome to Bejaye's Things where busy people stop First and taking that trip to Fantasyland is as close as your fingertips! www.bejayesthings.com
As the nation’s premier walking event for lupus, the Lupus Foundation of America’s Walk for Lupus Now™ 
promotes physical activity and healthy living in a family-friendly setting. This year, thousands of walkers will participate in more than 30 chapter events across the country. They will be walking to raise funds to save lives from lupus, an autoimmune disease which affects more than 1.5 million Americans.
Many Walk for Lupus Now participants have lupus, or are family, friends or caregivers to someone who has lupus. People often walk "in honor" of a friend or family member who has lupus or "in memory" of someone who lost his/her battle with lupus. They are joined by thousands of caring people who walk as individuals or as part of a team to raise funds to bring an end to this life-diminishing and life-threatening disease.
Funds raised from Walk for Lupus Now Walks will support lupus research, education programs, and patient and 
family support services. You will be helping people with lupus in your community who need your help.
Get your friends and family to walk and raise funds for Walk for Lupus Now in your city. Together, we can find a cure. To find a Walk for Lupus Now Walk, contact your local chapter of the Lupus Foundation of America.
Locations for Walk for Lupus Now 2008 are listed alphabetically by state.
Birmingham, AL -- Saturday, September 27, 2008
Phoenix, AZ -- Saturday, October 25, 2008
Greater Bay Area, CA -- Saturday, October 11, 2008
Los Angeles, CA -- Saturday, October 18, 2008
San Diego, CA -- Sunday, October 5, 2008
New Haven, CT -- Sunday, September 28, 2008
Davie, FL -- Sunday, October 19, 2008
Delray Beach, FL -- Saturday, October 4, 2008
Miami Beach, FL -- Sunday, October 26, 2008
Des Moines, IA -- Saturday, September, 13, 2008
Chicago, IL -- This Walk has taken place. Donations are still being accepted.
Naperville, IL -- Sunday, September 14, 2008
Hobart, IN -- Saturday, September 13, 2008
Indianapolis, IN -- Saturday, September 27, 2008
Kansas City, KS -- Saturday, September 27, 2008
Baltimore, MD -- Saturday, September 13, 2008
Battle Creek, MI -- Saturday, October 4, 2008
Detroit, MI -- This Walk has taken place. Donations are still being accepted.
St. Louis, MO -- Sunday, October 5, 2008
Union County, NJ -- Sunday, October 19, 2008
Rochester, NY -- Saturday, October 4, 2008
Cleveland, OH -- Saturday, September 27, 2008
Findlay, OH -- Saturday, October 11, 2008
Piqua, OH -- This Walk has taken place. Donations are still being accepted.
Silver Lake Village, OH -- 4th Annual Kassie's Lap 'Round the Lake for Lupus -- Saturday, October 11, 2008
Toledo, OH -- Saturday, September 27, 2008
Portland, OR -- Saturday, September 27, 2008
Philadelphia, PA -- Sunday, October 26, 2008
Memphis, TN -- Saturday, September 27, 2008
Nashville, TN -- Saturday, September 13, 2008
Seattle, WA -- Saturday, October 18, 2008
Spokane, WA -- Saturday, October 11, 2008
| |||||||||
| |||||||||
|
There once was a woman, who woke up one morning,
Looked in the mirror,
And noticed she had only three hairs on her head.
Well," she said, "I think I'll braid my hair today."
So she did and she had a wonderful day.
The next day she woke up,
Looked in the mirror
And saw that she had only two hairs on her head.
"H-M-M," she said,
"I think I'll part my hair down the middle today."
So she did and she had a grand day.
The next day she woke up,
Looked in the mirror and noticed that she had only one hair on her head.
"Well," she said,
"Today I'm going to wear my hair in a pony tail."
So she did and she had a fun, fun day.
The next day she woke up,
Looked in the mirror and noticed that there wasn't a single hair on her head.
"YEA!" she exclaimed,
"I don't have to fix my hair today!"
Attitude is everything.
Be kinder than necessary,
for everyone you meet is fighting some kind of battle.
Live simply,
Love generously,
Care deeply,
Speak kindly.
Life isn't about waiting for the storm to pass...
It's about learning to dance in the rain.
Importance of Medical Research
The Lupus Foundation of America (LFA) is the leading national organization focused solely on serving the needs of the 1.5 million Americans affected by lupus. When you consider that lupus affects the entire family, not just the individual with the disease, the LFA works to address the needs of nearly 10 million Americans who are affected by lupus.
At present, there is no cure for lupus. Some of the current therapies for lupus are toxic and can cause other health problems from long-term use. The U.S Food and Drug Administration (FDA) has not approved a new medications specifically for lupus in more than 40 years. More research is needed to identify a cause for lupus, develop more safe and effective treatments and, ultimately, find a cure for the disease.
LFA Leadership in Research
The Lupus Foundation of America is leading the national effort to find the cure for this widespread, devastating and potentially life-threatening disease. The LFA seeks to stimulate both public and private investment in lupus research, as well as support its own research program.
New Lupus Research Initiative
The Lupus Foundation of America has launched a new initiative aimed at bringing down the barriers that have obstructed progress on research into lupus. The Five-Year Research Support Program seeks to advance biomedical, clinical, epidemiological, behavioral and translational research that will lead to safe and more effective treatments for lupus and a cure for the disease. The program will help accelerate the pace of medical discovery in lupus with a goal of making clinical trails more feasible.
Funding for Lupus Research
Research funded by the LFA national office is made possible by generous contributions from individuals, foundations, and corporations, and through financial support provided by LFA chapters and their members. Additional contributions will allow the LFA to expand the scope and size of the studies it can support. You can donate to the LFA online here.
The LFA also works with the pharmaceutical industry and federal agencies to stimulate additional private and public investment in basic and clinical research, clinical trials, and development of new therapies for lupus.
During Fiscal Year 2005, the National Institutes of Health allocated $88 million for lupus-related research. Private industry provided an estimated $30 million. Nonprofit organizations and foundations, such as the LFA, provided an estimated $10 million. This level of funding still is insufficient to support all of the promising studies that seek to identify a cause and cure for lupus. Finding the cure will take hundreds of millions of dollars. We must continue to support efforts to increase funding for lupus medical research from all sources.
You are invited to join the Lupus Foundation of America in Washington, D.C. for our 2008 Lupus Advocacy Day!
Our two-day 2008 Lupus Advocacy Program will commence on March 10th with a training session and dinner at the Westin Alexandria Hotel to discuss how to make the most of your meetings with your Members of Congress. On Tuesday, March 11th, the LFA, as well as chapter representatives, lupus physicians and researchers, and other advocates will travel to Capitol Hill to meet with Members of Congress and inform them about how debilitating lupus can be.
The LFA needs you and your friends and family members to visit your federal Representatives and Senators to urge them to support more funding for lupus research and education.
Register now at http://www.lupus.org/newsite/pages/2008AdvocacyDayRegistration.htm
The registration fee for Lupus Advocacy Day is $35 per person, which includes dinner on March 10th and breakfast on March 11th. The room rate for the Westin Alexandria Hotel is $229 per night.
If you have any questions, please contact Sara Chang at chang@lupus.org or by phone at 202-349-1169.
Hi, and welcome to Living Lupie! This is a site I am using to share my experiences about dealing with lupus in hopes of helping others deal with lupus. I hope this helps you in some way.
On this site, you will find links to helpful lupus information and a blog about my lupie life. Feel free to send comments to me at Lupie Mail.
My Blog
In this blog, I discuss my daily lupus issues, such as, how I deal with the pain, adjust to the changes to my skin and hair, and whatever else I do that's lupus related. Click here for my Living Lupie Blog.
Lupie Book Reviews
I just added a link for books on lupus. I'll update this list often, so keep checking back. Click the link for Lupie Book Reviews.
Lupie Music
With lupus, your mood often affects your health. I've put together a list of songs to help perk up your mood and make you feel like dancing!
You have lupus? Funny, you don't look sick?
If you suffer from lupus, odds are you have had someone say this to you. In many cases, people with lupus don’t look really sick, but they feel sick. People often say to me, "I'd never guess. You look great." I usually reply, "Thanks. My body is mostly ornamental." If you have lupus, you may possibly feel achy, have a low-grade fever, swollen joints, a rash, plus a myriad of other symptoms. If you have just been diagnosed with lupus, it is also likely that you’ve been feeling sick for a while because the average lupus sufferer experiences symptoms for five years before he or she is actually diagnosed.
What is lupus?
Lupus is an autoimmune disease. This means that the immune system is attacking the body itself instead of a virus or infection. When this happens, a person with lupus can experience inflammation and cell and tissue damage. Click here to read more
Lupie Grab Bag
Okay, I've found some interesting lupie facts and news, and I didn't know where to put them, so I came up with Lupie Grab Bag.
Lastly
I'm not a doctor. I'm just a woman dealing with lupus and sharing information and experience. If you want advice on treatment and diagnosis, it is best to get that from a doctor experienced in dealing with lupus, such as a rheumatologist.
Katerina Canyon -- Living Lupie
Bravenet Blog 
Blog Community
Get a Free Blog
Manage your Blog
bravenet.com